APPLICATION OF A MODEL OF RHEUMATOLOGICAL CARE IN PATIENTS WITH RHEUMATIC DISEASES BY A NURSE
Keywords:
nurse, inflammatory joint diseases, rheumatological care, biological agentsAbstract
The rapid development of rheumatology over the last 10 years has affected the behavior and care provided by medical professionals serving patients with rheumatic diseases. The long-term prognosis of chronic inflammatory diseases improves after the discovery of highly effective drugs, such as biologics. The health care provided by a rheumatology nurse is developing against the background of the increased need for monitoring of patients in outpatient practices, as well as the growing standard of education and experience of rheumatology nurses. The functions and organization of the work of nurses are significantly influenced by modern trends in the development of nursing. In performing their duties, the roles, tasks and qualifications of nurses should be clearly described in practice frameworks that include protocols and recommendations that guarantee quality health care provided. Nursing activities include physical care, education, and patient counseling. , monitoring of medication intake and coordination of health services, as well as assessment of diseases, providing the patient with education and information about treatment. Advanced practice in rheumatology is described as a model of care in which nurses with extended roles assume personal responsibilities for patients and perform nursing interventions that include monitoring the patient's condition, providing patient education, and providing psychosocial support. Successful management of chronic rheumatic disease requires continuous adherence to treatment, which must be integrated into a person's daily activities. To achieve the goal of treatment, specific tools are used to assess the disease. These are validated forms for assessing the patient's condition, and there are different assessment measures for the individual clinical units. The nurse working in a specialized rheumatology practice must know and master the analysis of these scales or questionnaires. Monitoring the course of the disease is associated with periodic outpatient visits, where the preparation and subsequent monitoring of the therapy of rheumatic patients is performed.
References
Bech, B., Primdahl, J., van Tubergen, A., et al (2018). update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritisAnnals of the Rheumatic Diseases 2020;79:61-68
Chiou, S.J, Lee, P.C, Chang, Y.H, Huang, P.S, Lee, L.H, Lin, K.C. (2019). Assessment of patient experience profiles and satisfaction with expectations of treatment effects by using latent class analysis based on a national patient experience survey in Taiwan. BMJ Open. 9:e023045
Ekman, I., Swedberg, K., Taft, C., Lindseth, A., Norberg, A., Brink, E., et al. (2011).Person-centered care—ready for prime time. Euro J Cardiovasc Nurs.
Fries, J.F., Spitz, P., Kraines, R.G., Holman, H.R. (1980). Measurement of patient outcome in arthritis. Arthritis Rheum 23: 137–45.
Gossec, L., Smolen, J.S., Ramiro, S., et al. (2016). European League Against Rheumatism (EULAR) recommendations for the management of psoriatic arthritis with pharmacological therapies: 2015 update. Ann Rheum Dis. 75(3):499–510
Kotsis, K., Voulgari, P.V., Drosos, A.A., Carvalho, A.F., & Hyphantis, T. (2014). Health-related quality of life in patients with ankylosing spondylitis: a comprehensive review. Expert Rev Pharmacoecon Outcomes Res. Dec;14(6):857-72.
Larsson, I. (2017). Patients' conceptions of their own influence on good treatment response to biological therapy in chronic inflammatory arthritis. Patient Prefer Adherence. 11:1057-1067. Published 2017 Jun 26. doi:10.2147/PPA.S131239
Marvel, M.K., Epstein, R.M., Flowers, K., & Beckman, H.B. (1999). Soliciting the patient’s agenda: Have we improved? JAMA. 281:283–287.
Naughton, C.A. (2018). Patient-Centered Communication. Pharmacy (Basel). 6(1):18. Published 2018 Feb 13. doi:10.3390/pharmacy6010018
van der Heijde, D., Ramiro, S., Landewé, R., et al. (2016). Update of the ASAS-EULAR management recommendations for axial spondyloarthritis. Ann Rheum Dis. 2017;76(6):978–991
Wolf, A., Vella, R., & Fors, A. (2019). The impact of person-centred care on patients' care experiences in relation to educational level after acute coronary syndrome: secondary outcome analysis of a randomised controlled trial. Euro J Cardiovasc Nurs. 18:299–308.
